From the Organizer
Connor is one of our favorite HIGH 5 Soccer players! He’s been playing for
more than 5 years – always with a smile on his face that brings joy to everyone
he meets. We were shocked to learn that he was recently diagnosed with
Sanfilippo Syndrome, a degenerative, terminal disease with no known cure. We
knew we had to help.
All proceeds from our HIGH 5K for Connor will help fund the first-ever clinical trial for his specific type of Sanfilippo (Type C). The sooner funds are raised, the sooner the trial can begin. Connor and the other children with Sanfilippo don’t have time to wait because of the d rapid progression. Please visit Connor’s site to learn more about him, his family and the disease they are fighting.
We hope you’ll join the HIGH 5 community to help make the cure happen in time for Connor. Thank you!