The Connor family invites you to join them at the starting line for the seventh annual running of Jared's Run to raise money for their son, Jared and his fight against Sanfilippo Syndrome. Sanfilippo Syndrome is a terminal genetic disorder affecting children. These children are born healthy but over time lose their ability to walk, talk and even eat. Money raised from this event will help the Connor family give their son access to the best vitamin and dietary supports as well as participation in experimental treatments that are not covered by insurance. Additional funds will be donated to Team Sanfilippo to support research into Sanfilippo treatments and eventually a cure.  

 

Team Sanfilippo Foundation is a non profit organization focused on finding a treatment for Sanfilippo Syndrome. It's mission is to find potential therapies that can be tested clinically in the near future. They are working hard to advance research, education and improve the quality of life for the children affected by this disorder. They are dedicated to bringing a treatment to these suffering children within their lifetime.
 

REGISTRATION

Online Registration is $30.00 with no added service fee.  

Online registration closes on September 16, 2016.

 

Race Day Number Pick-up from 8:00 to 9:30 A.M. 

 

LOCATION

Everett Recreation Center

47 Elm Street, Everett, MA