Help Connor Beat Sanfilippo

Connor has Sanfilippo Syndrome, a rare, genetic, and fatal neurodegenerative disease likened to a childhood Alzheimer’s. He will lose all the skills he’s gained, stop speaking and walking, suffer seizures and movement disorders, and then die, all in a matter of years. Right before our eyes. But there's hope. A cure is possible. Your support will make it happen in time to save Connor. Please help fund the clinical trial that could save Connor's life. Your donation will help fund the first-ever clinical trial for Connor's specific type of Sanfilippo (Type C). The sooner the funds are raised, the sooner the trial can begin.


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Benefiting Cure Sanfilippo Foundation

$200
raised out of $250 goal

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Curesfp large
Benefiting Cure Sanfilippo Foundation

$200
raised out of $250 goal


Donors

$100.00 from Chander Prakash

"Good luck with your run! Prayers for Connor."

$100.00 from Mark Bofinger

"This is important to Jackie and thus important to me."